tag:blogger.com,1999:blog-619610936746341489.post406005418301679968..comments2015-09-24T10:43:05.738-07:00Comments on Mia's NPA Timeline: The Only PostJoe Waltshttp://www.blogger.com/profile/18115431808379517101noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-619610936746341489.post-64627555386048705092015-09-24T10:43:05.738-07:002015-09-24T10:43:05.738-07:00Thank you for the beautifully well described event...Thank you for the beautifully well described events of such a personal and heartbreaking nature. I am a Ped PA and wanted to learn more about this rare but devastating genetic disease. I will remember little Mia adorable face. Appreciate you sharing and offering this personal timeline.Anonymoushttps://www.blogger.com/profile/05564155344966412866noreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-65928057152606148772015-09-20T02:57:22.795-07:002015-09-20T02:57:22.795-07:00Firstly very sorry about the lost of your daughter...Firstly very sorry about the lost of your daughter. I also lost two daughters at the age of 2 ~ 3 months.<br />Currently I had a son of 3 months old with same disease. Requesting for advice from any one @ rajamusawar@gmail.com. ThanksAnonymoushttps://www.blogger.com/profile/07616079079372075187noreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-43111415937413884172013-12-11T21:17:30.062-08:002013-12-11T21:17:30.062-08:00I came across your post while looking for informat...I came across your post while looking for information about starting up a brewery. Being a father of a 22 month old daughter myself I can only imagine how difficult this experience was for you and your family(as I wipe tears from my eyes). I thank you for sharing this difficult experience with us all and know that Mia is in a better place now. She obviously has very loving incredible parents! Sending you and your family love and prayers. I love the picture of Mia and her monkey....so innocent and beautiful. Merritt Noelhttps://www.blogger.com/profile/04288290389145632469noreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-26940878334207318372013-03-01T18:17:05.384-08:002013-03-01T18:17:05.384-08:00What a beautiful little girl! I'm sure she bro...What a beautiful little girl! I'm sure she brought so much to your family. I'm so sorry for your loss.Tara Dembowczykhttps://www.blogger.com/profile/07587697872317951088noreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-14888724568547990492013-02-27T15:14:24.772-08:002013-02-27T15:14:24.772-08:00We learned about your site from OurSonnyLife (Chel...We learned about your site from OurSonnyLife (Chelsea). I wanted to send a hug out to your family around National Rare Disease Day. Mia was a beautiful girl and we are so sorry for your loss.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-19940610455761122482012-12-05T21:13:28.971-08:002012-12-05T21:13:28.971-08:00I was looking for information about this condition...I was looking for information about this condition and came across your blog. I just found out I have a relative with this. I'm very sorry for your loss and what you went through. Caitlin Riccihttps://www.blogger.com/profile/11142317318091448932noreply@blogger.comtag:blogger.com,1999:blog-619610936746341489.post-25254182536168236452011-11-06T08:31:46.333-08:002011-11-06T08:31:46.333-08:00I am so sorry. My son Gavin passed away on Octobe...I am so sorry. My son Gavin passed away on October 30th from type C. It's so hard. We just have to stick together.Gavin, Ethan, Falyn MOMhttps://www.blogger.com/profile/17077462888551281662noreply@blogger.com